Is the law on disclosure painting us in to a corner?
So I’m off to Toronto this evening for the big public meeting about criminalization that Tim mentioned in his latest blog entry. I could instead have gone to Peterborough where, by chance, there is also a public meeting on criminalization today. Criminalization is clearly a hot topic these days,
I don’t know why I’m kind of taking this personally. The law isn’t likely to affect me directly; I’ve said before I’ve been in the habit of disclosing, because it feels better than not disclosing. But I still see this as a personal attack. An attempt, and a successful one at that, to paint folks not really very different from me as criminals requiring punishment, public humiliation and imprisonment. And I hate that.
(For those new to this, the law is a bit complex, but the simplified version is that there is a duty for poz guys to disclose their status where there is a “significant risk” of transmitting HIV. Don’t do that and you risk prosecution. You only have to read the papers to know that’s not an idle threat.)
Now it’s being suggested that we not only need to disclose, but that we need to have some record of that conversation. In writing perhaps, or as observed by a friend. So if you thought verbal disclosure was hard enough, strikes me it just got one step harder.
Harder or not, that getting-things-in-writing thing may fit poz guys going in to a relationship, but it certainly doesn’t seem a good fit with how we relate to each other in baths, back rooms and other places where sex is a pretty anonymous affair.
So if that get-it-in-writing approach to disclosure doesn’t fit, because of the venue - you are in a room at the baths, for instance - all that’s really left is to practice safer sex. Always. No slip ups. Nothing wrong with that, I suppose; it strikes me as the right thing to do. Except I suspect prevention experts - and I’m not one - would tell you that didactic approach doesn’t work very well. We’ve always talked about choices. It’s why you don’t read “Use a Condom Every Time” ads much nowadays. It’s pragmatic rather than practical. and doesn’t recognize the complexities of human behaviour. Just like the law.
Wait. How about poz-on-poz sex? Surely that’s safe, legal-wise? Well, not so much, say the legal experts. Because of the danger of re-infection or super-infection or whatever the hell it is, the notion of “significant risk” in unprotected sex between two poz guys remains, So there is a theoretical risk of prosecution without disclosure, even in those circumstances, we’re told.
So it seems to me that gay men - or some of us - are being painted in to a corner and running out of options. In short, I’m thinking more and more that criminalization, for any number of reasons, sucks big time. Look how it even limits what we can say on this site!
Or did I miss something here?.
Tags: disclosure, HIV and the law, sex
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December 2, 2008 01:00 PM
John. Yep, perhaps I need to explain that “resentment” thing. What I resent is that laws which require us to share our staus with partners can and do result in that status becoming common knewledge in an entire community. Even though I personally have few hangups about disclosing myself, that seems like an affront to our civl liberties - but it’s the natural outcome of current laws. Given that in all other areas, our health information tends to be pretty fiercely protected, this seem entirely un-Canadian to me. Follow me?
But you’re absolutley right, safer sex or abstention are really the only alternatives. Which was essentially the point of my post.
December 1, 2008 11:16 AM
>>But yes, although I and others do disclose, I DO resent sharing medical information. Why wouldn’t I?
When you say sharing medical information, do you mean disclosing your status? I don’t see any way around that, other than practicing safe sex or abstention.
November 30, 2008 07:19 AM
Hi E . Thanks for alerting me to this article, I hadnt seen it.
Despite the many inaccuracies in this truly horrid piece of reporting, I suppose it’s good to hear from the opposite side. As I’ve said before, I think most people in Canada actually support criminalization. We as a movement don’t, of course, BUT we need to do a better job in bridging that divide. It’s also clear that even within our movement, there is some convincing to do. (Exhibit A: Peter.) In short, more dialogue is needed.
Certainly that reporter’s - and Peter’s - experience of the Toronto public meeting on sex and the law was very different from mine, and I think from most everyone in the room. The article is, in fact, so laced with inaccuracies and prejudicial comments that I hardly know where to begin, but here goes:
“Many HIV-positive people resent the obligation to disclose their health status to those whom they may put at risk“. That’s really inflammatory language - and so misleading. We know from research that HIV positive people are very concerned about protecting the health of their partners; many disclose even though stigma makes it both hard and dangerous to do so and/or they practice safer sex. Some even abstain. But yes, although I and others do disclose, I DO resent sharing medical information. Why wouldn’t I?
AIDS Service Organizations “are encouraging HIV-positive people to view themselves entirely as victims, not as agents. In other words, if they infect someone else, it’s the other person’s fault.” Bullshit! I’ve been an ASO client for 15 years. I’ve never heard anyone say that, nor would they. In fact the reverse is true. Again, this is just inflammatory talk, with no basis in fact.
“Peter believes this is insane. “I’ll always disclose,” he says. Good for Peter! But let’s be reasonable here. People who use other strategies to keep their partners safe are NOT insane. And, Peter, name-calling is the least productive way of dialoguing.
“It’s beyond sense,” says Peter. His own doctor, after diagnosis, read him the riot act about disclosure. “These people are being given the easy way out, because the leaders are saying, ‘Hey, we don’t want you to be sad.’ ” Peter, referring to poz folks as “these people” is very telling. Again, his remarks just don’t reflect reality.
In fact, much of the world has moved way beyond Toronto’s AIDS establishment, which seem stuck in a swamp of victimology and denial Come on!. The United Nations is opposed to criminalization, for gods sake.
Frankly this article makes me angry, and I wont dissect it any further than I have done. I’ll let others do that. ! particularly hate, however, how the bravery of those poz folks who stood up and talked about their status at the meeting has not just been ignored, but trashed. Peter was apparently present at the meeting but wasn’t brave enough to stand up and state his views. All I can say is I wish him courage on his journey to a place of better understanding.
November 30, 2008 06:06 AM
Hey Bob and others,
Just wondering if you have had the chance to read Margaret Wente’s article in the Globe on disclosure. I would like your thoughts.
http://www.theglobeandmail.com/servlet/story/RTGAM.20081128.wcowent29/BNStory/specialComment/home
Cheers,
E
November 29, 2008 10:03 AM
Hey Rodger. Sorry you missed it. Yes, the meeting was videotaped, and I gather the intent is to post it on the OAN (Ontario AIDS Network) website at some point. It’s not there yet, I see, but check here periodically: http://www.ontarioaidsnetwork.on.ca/
November 29, 2008 08:30 AM
I wish I could have made it but I had a commitment I couldn’t get out of. I think I read in Tim’s blog that the meeting was videotaped?
November 28, 2008 08:07 AM
Hey Brian. Thanks for commenting. Frankly, in part because of the dialogue on this site, I’m becoming increasingly questioning about disclosure as a workable, practical prevention strategy for many people. Instead I’m tending to side with folks like Rodger and others, who’s position is essentially, I think, that if you protect your partner, there is no burning need to disclose. (Except perhaps in the context of what makes for a good, honest relationship.)
I raised this perspective - and plugged this site - at the public meeting last night. The points I made around this were:
1. Disclosure to partners almost inevitably means disclosure to acquaintances of that partner. People talk. So this can and does lead to disclosure to the ENTIRE COMMUNITY, particularly in small/rural communities. That’s not an intended consequence of the law, of course, but it’s real. Anyway, this natural outcome of the law seems to clash with our basic right to privacy of heallh information. So laws which almost inevitably result in breaches of that confidentiality are unjust and unworkable, and people won’t follow them. Turns out that HALCO is in fact looking at legal remedies that address the right to privacy issue
2. I challenged Public Health, who routinely counsel poz folk who come before them to disclose to their partners AND have safer sex. Where are they coming from? Even the law doesn”t seem to demand both. I made the point that we welcome Public Health as partners in prevention work, but that we all need to get on the same page.
People clapped.
Altogether a very interesting meeting, focussing heavily on the impact of stigma and the practical problems around disclosure. I know you have few issues around disclosing for yourself, and nor do I - and I dont want to knock it as a strategy for those open about their status - but you would have liked this discussion.
November 28, 2008 06:47 AM
The law and all of this makes my head hurt. I think I’ll need to grab a coffee before I attempt at something like this.
I guess it always comes down to cover you ass on the disclosure bit. That’s about as many words of slight wisdom I can get out.
Have a safe journey to Toronto Bob!